Anmay of Sultanpur, UP is suffering from a rare disease named SMA Type-1, which needs a vaccine of 16 crores. The child is getting a lot of help from all the people. Meanwhile, recently Sonu Sood has appealed to the people for help for Anmay.

News Nation Bureau , Edited By : Pallavi Tripathi , Updated on: 12 Sep 2022, 05:06:20 PM

sonu sood

Sonu Sood appeals for Anmay (Photo Credit: Social Media)

New Delhi:

8 months old innocent Anmay suffering from a rare disease named SMA Type-1 is getting help from all the people. The vaccine for this disease is 160 million, which is available only in America. Today we will tell you the story of Anmay of Sultanpur in UP. Knowing this will probably bring tears to your eyes. Suffering from a rare disease named Spinal Muscular Atrophy Type-1 (SMA Type-1), Anmay of Sultanpur needs people’s prayers and help. Bollywood actor Sonu Sood has also appealed to the people for help.

Usually newborns learn to sit on their own in 6-7 months and walk on their knees by 6-10 months. But Anmay, born on February 2022, is unable to do this even after being 8 months old. Anmay has that disease (SMA), which happens to only one child in about 10 thousand. When Anmay was born, neither his parents nor the doctors knew about Anmay’s suffering from this disease. But when Anmay was 3 months old, he could not move his arms and legs properly like other children. Along with this, the skin and bones of this innocent also started getting weak. At first Anmay’s family felt that this happens normally. But when Anmay’s mother and father came to know that their child has SMA disease, whose vaccine is 16 crores. If he does not take it, his life can also be lost, then he is broken.

Many studies and medical experts believe that it is a genetic disease. In this disease, the body does not have the gene to make proteins. Because of this, protein is not able to reach the parts of the body. Also, the mind does not have control over the muscles of the body. This is called Spinal Muscular Entrophy Type-2.

Former member of IMA and pediatric doctor Sunil Singhal gave information about this. In which he told, America has made a vaccine called Zolgensma for a rare disease like SMA. The first treatment with its vaccine was done in the year 2019 in America itself. But this sweet smile does not know that if it does not get the vaccine for zolgensma, it can die. The cost of this vaccine is Rs 16 crore. Due to its coming from America, there is also an import duty of 10 crores. Coming from a middle-class family, it is impossible for Anmay’s parents to pay such a huge amount. Anmay’s father is a bank worker in Sultanpur, while his wife is a housewife. Due to non-collection of money, the parents of this innocent are definitely upset. But he has not given up hope of keeping his son alive. He has made an effort to collect money with the help of crowd funding and many NGOs. So far, Anmay’s parents have got help of about 2 crores through crowd funding but still Rs 14 crores are left, which is a huge amount.

Apart from helping social media and NGOs, actor Sonu Sood, who serves people in trouble, has also helped Anmay financially. At the same time, he is appealing to the people that more people should help him.






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First Published : 12 Sep 2022, 05:06:20 PM



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